because I can't seem to get the individual posts to list in anything other than reverse order...
With apologies to Hello Kitty...
All the procrastinating is done. Bargaining finished. The calendar more or less cleared.
This morning, I did my first application of Efudex. Only 29 days to go!
I was awake at 4:30 am. No, I didn't do it then. Like anyone wanting to avoid the inevitable, I waited until the last minute. But I did find time to go over the literature again. Hey, I couldn't sleep anyway!
I was awake at 4:30 am. No, I didn't do it then. Like anyone wanting to avoid the inevitable, I waited until the last minute. But I did find time to go over the literature again. Hey, I couldn't sleep anyway!
- treated area may become unsightly during treatment and in some cases for several weeks after treatment
(Yes, any of us that have seen the photos of others online can see this)
- skin irritation, burning, redness, dryness, pain, swelling, tenderness, or changes in skin color,
- eye irritation, trouble sleeping (as if hearing you have any kind of cancer is ever a
- irritability (from the lack of sleep no doubt),
- temporary hair loss (meh... it could be permanent for all I care),
- abnormal taste in the mouth
For those out there that have to go through this, I know you're scared. Heck I'M SCARED. However, doing something about it is better than not doing anything and things getting worse.
I would have killed to be able to put a moisturizer on today (dry indoor air) but thats a no-no.
So I put on my gloves and spread the Efudex on. Its consistency is a little odd and its hard to get it to spread evenly. Practice will make perfect I guess. The good thing is that it doesn't appear to be greasy and doesn't appear to have any scent, pleasant or otherwise.
I think it's important to realize that everyone is different and will get a different reaction based on how much cancer/pre-cancer/AK you have on your skin.
This is part of the reason I'll be posting photos. Perhaps not everyday though. No touchups. No Photoshop blur tool, no vaseline on the lens.
The other reason is that if it can motivate anyone into wearing sunscreen to avoid having to go through this, then maybe all the angst and, according to the warnings on the label... pain, will have been worth it.
I suspect that the top of my head is going to be the worst, but I already know that it is the part that needs treatment the most.
Friends have said they don't see anything. I do. I can feel it. It feels kind of scaly...like dry skin, which is what I thought it was. This is what makes skin cancer so insidious. You either can't see it, or think its something else.
First off, yesterday....Day 2 was a non-event. Thus, the reason for no post.
No apparent reaction other than a few itchy spots.
You never realize how much you touch your face until you have a chemical on it that you want to avoid getting on your hands and then transferring it to other surfaces, eyes, mouth.
Even today, Day 3 has been good. I was out digging some plants out of the garden (yes...wearing a hat!) but have noticed my skin is a bit dry. I just put on the evening application and can't be 100% sure... but it looks like I'm getting a reaction on my temples... particularly the right side. Kind of a reddish mottling beneath the surface.
We'll see what tomorrow brings!
Now that I have a couple of official followers (welcome/いらしゃいませ！)I guess I'll have to be better at keeping up.
Day 4 - yesterday
About the same - the spots on the side of my head are getting more prominent but the worst pain was from where I knicked my scalp shaving. ;-) Others have said that once they get into this, they have to stop shaving.
Day 5 - Thursday October 27th - Only 25 days to go!
The mottling on my temples is getting redder, and a few spots have cropped up right where I expected. The areas around the spots that were previously burnt off are clear so far, so I guess all the nasty stuff was killed off in those areas. Pretty amazing when you look at it and think that this is all sun damage. The AK spots (actinic keratosis or "solar" keratosis) spots on the top of my head aren't as rough/scaly as they were before.
I tried taking some photos this am but no luck... I had to get to work. Perhaps I'll work on it tonight or tomorrow. Other than that, just the occasional itch and a dull headache. Others have talked about a burning sensation (like sunburn) but I haven't experienced that yet. I'm not feeling great today and am quite nauseous. I can't be sure if its from the cream or perhaps the flu bug that seems to be going around. Time will tell.
Two more days until I start doing my entire face - for 3 weeks.
Things are starting to happen now.
For a while there, I thought maybe I got a bad batch of Efudex.
Not too much burning/pain but I can feel and see something happening.
I was nauseous yesterday and today. I'm not sure if it was something going around, or from the cream/ointment I'm putting on twice a day.
Things are progressing well now, as is the pain.
I find its at it's worst in the morning as you start moving your face/forehead muscles. It's like having ground glass rubbed into an open wound. I'd gladly advocate having Botox done before doing Efudex... but I admit that having this stuff on my forehead means I don't move it around as much.
As the day goes on, it gets better painwise, and I find that some of the redness tames down a bit.
I'm SO glad I started doing this in the fall and not at the beginning of summer. Even sitting in sunlight through the car window is very painful.
I started putting the Efudex on the rest of my face and ears two days ago, and I'm off to the Drs. tomorrow.
Okay, today having a shower was very painful.
The water felt like acid on my skin.
Putting the cream on afterwards was painful as well. Time to start taking some Tylenol. Lets put it this way... I had extensive gum surgery a few years ago and didn't take the Tylenol 3s and Percocet I was prescribed. I'd be taking smaller portions of them starting tomorrow.
All this being said, it hasn't been as bad as I suspected - so far. I keep trying to keep that final goal in mind - having skin that has much less pre-cancerous spots and less likely to develop melanoma at some point in the future.
My visit to the Dr. yesterday was interesting. He doesn't want to prescribe me anything to relieve itching because "we're looking for a histamine response". His solution to that and the pain was "Tylenol and cold compresses". He said that I should continue until I get blistering/scabbing and then stop - not necessarily going by the 30 day instructions he initially gave.
He suggested that it was "my call" to do the rest of my face at the same time, and that perhaps it would be best leaving it until after we're finished on my forehead. Who wants to go through 4 months + of this? Given that I'd already started, I figured I may as well persevere.
Meanwhile, I see things are starting on the rest of my face. Particularly near my mouth. Oh joy. That means more of me to see for anyone reading this.
It's interesting (in a way) that the angry spot in the middle of my forehead corresponds to where I had a sunburn blister back in 1976. I remember that. I got burnt so bad I could barely move my face and mouth. History repeating.
A note to any Doctors that happen to be reading this:
- Don't treat your patients as a number.
- Give them more than 3 minutes of your time.
- Listen to them. We're people and don't have all the knowledge you do.
- Having Interns examine and deal with us is fine, but you walking in for the last minute of our appointment time does nothing to instill confidence. Especially when a good deal of the first two minutes was spend clarifying/correcting details in my file.
- Don't lose your patience with someone asking what you seem to think is a silly question. This is new for many of us, and we're scared.
- If a patient asks about pain meds, or something to make the process easier, don't pooh-pooh the idea and suggest cold compresses. Some of us won't ask unless we really need it. Not everyone is a drug addict looking to score a fix.
- GPs.... please do NOT refer your patients to specialists who are so busy that a patient can never get through to their office by phone, or those that only hold "clinics" once a month at a local hospital. Nor should you refer them to Drs. who are more interested in selling Botox/Restylane and other cosmetic fixes than dealing with problems that could kill you.
I don't know how they got here, but welcome to those visitors from Russia!
Things are progressing.
Warning... this may be a little too descriptive for the squeamish...
As I washed my face this morning (with a Spectra-gel-type cleanser) a piece of my forehead fell off. Not a large piece, but a chunk of skin fell out, leaving an indentation where there was not one before. No bleeding, just an indentation. About 1/4 inch wide by 1/8 inch high.
The skin below is red (as is most of my forehead anyway). It doesn't hurt. Well, actually my entire forehead hurts, but this spot in particular doesn't hurt more than the rest of it. I've heard of this happening to others who've done this treatment, but still, it took me by surprise. Perhaps this is the beginning of a "shedding" phase. Much of my forehead is very dry now and some areas are starting to crust - which is expected.
I have noticed that the spot on the center of my forehead that is the reddest, is very much where I had a sunburn-induced blister back in 1976. I remember that burn VERY well because I could barely talk, that's how burnt my face was.
There are other spots on my face below my eyes that are starting to "light up". Not nearly as much as I expected, but around my mouth, chin and nasolabial folds (laugh or smile lines). I have every expectation to see some more spots appear next week.
I also found it interesting that my scalp hasn't been as affected by the chemo-cream as much as I thought it would be. You can almost see where my hairline used to be, when I had hair. So I would assume from this, that a good portion of the damage done was started more than 20 years ago.
I've received emails from a few people who've stumbled upon this blog, who were given a prescription for this drug by their Doctor but were not told what it was, or what it was for. This seems to be very common, and not limited to any one particular country.
I've also heard from someone in Florida that the same tube of Efudex that costs me $39 at Costco here in Toronto, is closer to $300 in Florida. Thats ridiculous, but seems to be fairly indicative of some of their particular health care system problems.
I had a good night out last night. Wearing a hat is very uncomfortable. It itches and keeps the heat in, which makes things even more uncomfortable. So I went hatless at a fundraising function with some friends.
I got some stares, but no one said anything.
I was doing great today until I had a shower. When I got out I looked like an extra from the "Walking Dead". Lots of skin peeling off. A particularly weighty piece was from the spot where all of this journey began several years back. A spot on my forehead that started bleeding for no particular reason while washing my face. Fast forward and here we are today.
So I took some Advil and then it was back into the bath to try gently rubbing some more of it off. This took about 10-15 minutes. Then I had to wait for it to dry and put the Efudex on and get on with my day.
I've been meaning to post full-face photos but it's pretty time consuming to get one where I don't look like the mug shot of an axe-murderer (with no slight intended to axe-murderers).
Perhaps its not possible ;-)
I've read where people doing this treatment count down the hours towards the last application, or give up after 2 or three weeks. I can very easily see how that would be possible.
After I put the Efudex cream on, I noticed that my skin was kind of weeping. Much as it does when you have a bad burn.
But I'll press on.
Fortunately, I have the next few days off work, so I won't be assisting anything to fall off. I'll let it fall naturally. I'll just concern myself with the move, which is progressing. Off to do a cold compress.
On the literature that comes with this stuff, it says that it might make you sensitive to sunlight. They aren't kidding! Even with the sun low in the sky today, simply standing in front of a window is uncomfortable. I feel like I should dig out my vampire teeth and black cloak from the Halloween supplies box.
By the way, the indentation made by the chunk of skin that fell out the other day appears to have leveled out with todays sloughing.
Tomorrow, I'm off to Costco for another tube of chemo cream!
In the name of all that is holy!
Not a good day.
There are some negatives about being a bit of a pack rat/hoarder. Yes, I have a hard time throwing some things away.
However, today I'm SO glad that I kept the Tylenol 3s that I never took after having dental implant surgery. I think I'm tired because the pain is constant. It doesn't seem to come and go in waves.
I have visions of F Murray Abraham in that Star Trek movie where his facial skin is being stretched and at one point, when he gets upset, sprouts a leak from his forehead.
I've tried Aloe Gel... 99.9% pure, thinking it would help... but it did not. Stings like hell once the cooling effect wears off. I was reading somewhere today where people seem to get better relief with ointments rather than creams/gels. In the meantime, its back to cold compresses.
The worst part is the middle of my forehead, which is VERY tight, and I can tell that there is going to be some major peeling in very short order.You can't really tell in the photo, but the center of my forehead is a bit darker than the red around it. Almost a purple color. Followed by the corners of my bottom lip, which have become inflamed. I haven't been putting the stuff on my lips but its had an effect on the bottom lip.
Someone asked me today if I was wearing lip-liner.... uh, no.
I'm trying to keep a sense of perspective though... (there's that word again).
The friend of my brother and his wife - who was so ill a few weeks back, passed away on Sunday. Discovered an odd-looking mole less than a year ago. The funeral is tomorrow. I'll stop kvetching. My condolences to his wife, children and family.
I will add to this later, but if you've stumbled across this site because you're going to be doing Efudex treatment, do yourself a favor and order some Aquaphor in advance. If you are in Canada, it can be hard to find, but I know at least one Shoppers Drug Mart has it. If you cannot find it anywhere, let me know and I will send you some. I've seen it for sale on line for 5.99 US.
It's way overpriced here in Canada - $11 for 1.75 oz and you might have qualms about putting what is essentially vaseline on your face.
Do it. Do not even think of trying to "get by" without it. Its pretty amazing.
Note that in Canada, the "Eucerin" name appears in larger font at the top of the tube... Aquaphor appears smaller in the middle of the tube.
I was ready to commit several different types of homicide/manslaughter today, tore a bank appraiser a new one (he deserved it) and I think I scared the bejeezus out of one of my neighbors because she didn't recognize me. Pain and discomfort.
I called the Shoppers near me and they had it. The young woman that worked in the cosmetics department couldn't have been nicer (she was amazed that the "healing water" tester she told me to try, stung.) I got my Aquaphor (made by Eucerin) came home and put some of it on.
I won't say it was like dipping in an alpine lake, but some of the pain and tightness has diminished. To the point where I am up and not feeling too bad. However, if I were that bank appraiser, given his attitude today, he shouldn't expect to leave here on Monday unscathed.
I was ready to crawl up into a ball and self medicate for the evening... how was I going to get through another 12 days of this before the healing can begin?? This stuff may make it possible.
Be warned, it will amplify your redness and I noticed that a few minutes after applying it, some of the skin on my forehead had "bubbled" to the surface. However, I am hoping that I'll be able to sleep better tonight.
NOTE: As you know, you are not supposed to apply anything to your skin within two hours of Efudex application. Make sure you apply the Aquaphor AFTER the two hours have expired.
I read today that WAY back 9 days ago I said that this whole thing hadn't been as bad as I expected.
What a difference a week or so makes.
Okay, I admit it.
It is now as bad as I thought it'd be. I don't know how some patients have gone 30 days or more of doing this.
Yesterday, I was again, ready to give up. These first two photos are from Day 19. Yes, that spot to the left of my nose down towards my mouth is as cranky as it looks.
I'll be honest, the pain itself isn't what is killing me... it's that it's constant. 24 hours a day. It really wears you down.
I don't know what is in this Aquaphor stuff, but it feels
like there's sand in it when I apply it. Yes, it brings some relief, but it just dulls it.
With a bad sunburn, it lasts maybe two days and then its done (or so you think!)
If you're using Efudex for the first time, make sure you give your lips a wide berth, unless you're told to apply it to them. Two nights ago, a chunk of skin fell out near the corner of my mouth. Wow, that was painful. I'm sure it was not 100% healthy skin but I could have done without it. Perhaps once this is all over, I'll revisit applying it closer to my mouth for a few weeks. One problem area at a time. Right now everything is sore. Especially the area around my nostrils (another area you should give a wide berth to!) You know that cracking you get with a cold and blowing your nose too much? Multiply that by about 10. But much like having my experience having my wisdom teeth removed, one spot hurts more than all the others, which can be distracting. In this case, it's my forehead.
Then there are the bloody spots that are now occasionally popping up on my forehead. Those, I'm used to. I can also feel that I'm in for another big peel in a few days. The tightness is incredible, and even biting into food is, if you pardon the expression, an eye opener because you get a shooting pain from the skin on your forehead stretching. So obviously, smiling for a photo is out.
I've noticed that my nose and eye area is swollen, which may or may not be the reason my vision feels a little wonky. I recall reading about someone else with this side effect.
Tomorrow is the 3 week point (of 4) for my forehead. Two weeks for the rest of my face. By the end of another week, I expect that my entire face will be red. Every day brings a spreading of the existing red, or spots popping up on my cheeks. Strangely, the area where my moustache would be hasn't got any. Strange because I only started wearing that once I hit my 30's, after most of the sun damage would have been done (I'm guessing, based on my scalp and it being relatively clear)
One thing that has been interesting is watching how others treat you differently when you look like this. Not that salespeople these days in Canada could ever be classified as friendly, but its even worse. Putting your change on the counter rather than putting it in your hand, being very terse and not very friendly, even when they have always been before (like at the local coffee shop). People that look like they're going to hold the door for you, look back and see you coming, and then run off so as not to have to have any interaction with you at all.
And so begins what is supposed to be my final week. At the link a friend brought to my attention, at least one Dr. advocates 45-60 days of this for facial treatment twice a day. I can't imagine. Though I suppose being delirious for the better part of a month and a half would be good to help the time pass.
"Movember" is supposed to be where guys grow a moustache in support of prostate cancer awareness. I can't help but chuckle at the irony that I shaved my moustache off to do this, and it appears to be the only place on my face that doesn't have precancerous spots.
It's a "virtual mo".
I'm also treating a spot on my left shoulder that is getting cranky, but does not hurt.
Not a bad day today. Mornings seem to be the worst. My forehead is starting to peel again, and since I've been avoiding my nostrils, the cracking there is healing. I had the pain under control pretty much for the rest of the day. I didn't sleep much last night at all, so I've taken something to help tonight. I'm hoping it'll kick in shortly.
I think my shower today was about 45 minutes long and in two phases. After the first shower, I looked in the mirror and my face was grey. (Note to self... start showering with the phone) All the dead skin on the surface had sopped up water and I looked like something someone had dug up after being planted for a few weeks. To be honest, even if I had taken a picture, I'm not sure I'd have posted it here. It wasthatgruesome.
So it was then back into the shower to GENTLY exfoliate some of the dead skin off.
As I finished and it started drying, it really started to hurt. You know you're in trouble when putting chemotherapeutic cream on your face feels good. At least it was moisture of some sort.
I had a great lunch with friends, with lots of laughter (which REALLY hurt btw!)
Every time I look in a mirror I can't help but wonder, like many have before me I'm sure, how will this ever turn into something normal looking again?
I also hope that I can somehow skip the crusting phase that comes the week after you stop treatment! I know, not likely.
Two things I mean to mention before I forget..
Last night I went out after it got dark (as you do while you're doing this) and was checking my neighborhood Rexall drugstore to see if they have Aquaphor (now that I know what it looks like). They do. While I was there, I was checking out the sunscreen section. They only had one product that does not have Oxybenzone in it. Ombrelle makes a product with Mexoryl. For more information on Oxybenzone and good sunscreens, go here.
From there I went outside to have a veggie hotdog from a street vendor. (no comments about the health implications of eating street food please!) While I was sitting there, someone came up and tried to give me money. I guess they thought I was homeless or down on my luck (well, 1 out of 2). I was taken aback at first and started to protest but then took the money and gave it to another guy around the corner on my way home who is always asking for spare change.
I can say that last night was a night I won't soon forget.
I went to bed about 10 and tossed and turned until about midnight, when my face started to feel as if someone was going at it with a blowtorch, and then fire ants had a picnic afterwards.
It was, in a word, horrific.
Who came up with this idea of a treatment?
I am in awe of anyone who has done 30 days of this.
I read somewhere recently: "its not hell, but you can see hell from here".
I put cold facecloths on my face and eventually broke out the ice packs and crawled into bed with them. It offered some relief, but not enough where I could fall asleep. Even my usual 2 allergy tablets, which normally knock me out - did nothing. I finally dozed off at 8:30 this am... just in time for the phone to ring at 9:15. I couldn't muster the strength to answer it.
Eventually I had to get up to put more of this stuff on my face. I did everything south of my forehead and thought "enough is enough". I can't do this anymore. I left my forehead without Efudex but put some Aquaphor on it to give it some moisture.
I eventually felt bad and put some efudex on very sparingly on top of the aquaphor. At this point, I don't know if I can tough out another two days for my face, and 5 days for my forehead.
My chin doesn't even feel like my own skin. It's thick and my dimple is almost flattened. It's so swollen I'm walking around with a perma-smirk.
Yes, I know you just got your drivers license and you think that the most important thing is getting a car. Pfft. Save your money. That first car you get in two years will be great, last a heck of a long time and will take you all sorts of places.
You'll have great experiences and meet some great people along the way, but one of the most important things I could tell you will seem stupid to you right now.
Okay, two things. One: yes, you'll lose your hair at an early age. Don't fight it. Give in to it. Some people actually find bald heads a turn-on.
Secondly, and most importantly: Wear sunscreen. Every Day. High SPF. It doesn't matter if its winter or summer, sunny or cloudy. Wear it.
I know you're a sun lover but the sun is NOT your friend. It's your skins' enemy. It will kill you if you give it half the chance.
Wear sunscreen now, and perhaps you can avoid having to do a month long course of chemotherapy on your face and forehead to kill off all the precancerous nasties because burning carcinomas off with liquid nitrogen isn't enough any more. This month long course is extremely painful, include many sleepless nights of pain and itching, followed by at least another month of looking like something from a horror movie and getting all sorts of side-eye from others.
Worse yet, you go through all of this only to be told that this isn't just a one shot deal. There's the possibility of having to do this again, and the rest of your life is going to be dealing with sun damage, and watching out for spots that develop.
Thankfully, you'll never like tanning beds, but do yourself a favor - wear hats, take Vitamin D supplements and stay the hell out of the sun!
49-year-old you (yup... you'll eventually be THAT old)
ps. buy as much Apple stock as you can and hold on to it.
Tonight was my last application on my face below my eyes.
Overall, a fairly good day with very little pain, except while in the shower this morning. I
tried not to touch some of the skin that was falling off.
If things go the way they have been, I should start feeling more pain tonight after midnight.
My chin has been very sore as there's some very deep-rooted action going on there.
Shaving is very painful, even with a new blade. Especially on the chin area thats swollen. Note: I only use triple bladed razors. I can't even imagine attempting to shave, even under normal circumstances, with a double or even single bladed razor. I have an electric somewhere, but can't seem to find it.
Only two more days for my forehead!
Interestingly, the lone, circlish, whitish spot on my forehead (seen at top photo on the right) appears to be where my first AK was burnt off (2 years ago?). There is a smaller white spot under it that appears to be damage-free area from the first spot being burnt off.
The bottom photo shows the inflammation in my chin. It's very tough skin and feels similar to how your cheek feels when you have freezing at the dentists. Also darker than the red around it.
Today is the last day of applying the fluorouracil (Efudex) to my forehead. I can't believe I made it. There were so many times I was ready to quit, said "enough is enough" and a few days where I put it off for an hour or more while I debated about it. I probably should do an extra day for good measure, but I won't.
I've got one more application tonight to do.
I could also name this "the lost day". I didn't get a wink of sleep last night until about 6 am.
Already, I can see where the rest of my face is getting redder/dryer as the cream does its thing. Apparently, like most chemotherapy, it is cumulative, so it's still working even though I stopped two days ago.
My chin doesn't hurt as much today, which is great, because anything brushing against it, being clothes, blankets etc, hurt like the devil! Yes, shaving hurts, but not shaving drives me batty because it's almost as if the facial hair in that area is now super sensitive
For some reason, the pain and itching is the worst in the morning and then starts up again in the evening.
I could also name this "the lost day". I didn't get a wink of sleep last night until about 6 am.
The itching and the burning kept me up, applying cold compresses and Aquaphor. Unfortunately, this makes you an itchy, gooey mess. My face was sticking to the pillowcase (which you go through many of when you do this) As a result, I think I dropped off about 6 am and napped until about 1 pm. The day goes pretty fast when you do that, with it starting to get dark already at 2:30 in the afternoon. (cloudy and grey outside).
After slopping on this vaseline-like product called Aquaphor several times overnight, THIS is how dry my skin was this am on my forehead.
I had a shower and let me tell you, I could very easily live in there right about now. Once the skin gets moist it doesn't crack and hurt and I get some relief. Several minutes out and the tightness starts again.
While I was in there, I gently tried exfoliating as much as I could without rubbing my skin raw. The skin was coming off in chunks. It's no wonder my chin doesn't have any sensation, the dead skin there is similar to the heel of my foot.
I got out and immediately put more Aquaphor on it. It still hurts, but not nearly as much as without it.
On one of my visits to the washroom last night, I noticed several dark spots appear that are dried blood that has scabbed over. They just seemed to come out of nowhere. I'm assuming these are the nastiest bits that we're trying to kill off. This one here is located close to that white spot where my first AK was burnt off a year or so ago.
Well, those who've walked before me are right.
You struggle through 30 days of applying this stuff to your raw, sore skin - only to discover that it doesn't end then.
I think I got a total of about 45 minutes solid sleep last night, thanks for the constant itching/pain. People have asked what the pain feels like. I can probably best describe it as that feeling you get when you first realize a mosquito is biting you, but all over your face.
For whatever reason, as I've mentioned, it gets worse at night. My chin feels fine during the day, relatively speaking, but last night the pain was radiating through my jaw. Very similar to the feeling you get when you bite into something really sour and you get that achey feeling and produce excess saliva.
Again, I did the running back and forth to the sink splashing cold water on my face, followed with Aquaphor (I don't own stock in this stuff - honest!) and then laying in bed with a cold towel placed over my head/face.
On the positive side, I have noticed that some of the reddening is less intense, and fading from parts of my cheeks.Day 35
It's quite interesting so see how fast some of the red is fading. People are commenting that I look better than I did yesterday.
I suppose thats good. I don't necessarily see it, but showers are somewhat less painful, and sleep is becoming easier to get.
I'm still using the Aquaphor to not only combat dry skin, but to relieve the pain that comes with the extremely tight feeling I have across my forehead and chin.
I woke up this morning with a forehead many Hollywood-types would be jealous of. Well, except for the red color and dry skin flaking off that is. There was not a wrinkle on it. It was very painful to move and my chin remains very tight unless lubricated with Aquaphor. So much that it's hard to move my mouth to even speak. The skin is not coming off in chunks anymore, but in annoyingly small pieces that are hard to get off. Very itchy too.
The center of my forehead and my chin are still somewhat numb, leading me to think that there is still considerable peeling to happen in those two particular spots.
Two different people this past weekend suggested Cannabis oil would have been a much better way to do this than the Efudex, making about 4 people this week that mentioned it. That videosure gets around. I first heard about cannabis oil about a week before starting treatment. I asked around and no one seemed able to get me any. At the time I chalked it up to some of the other alternative therapies everyone and their uncle seemed to be putting forward. Perhaps I'll put some feelers out again.Day 39
Okay, I'm not sure whether this is healing day 9 or 10. I seem to be a day off somewhere.
Either way, today is the first day where I'm not in any pain, though I was still flaking like a snowsquall this morning. The itching hasn't been too bad either. Mind you, as I've mentioned before, it seems to get worse in the evenings. Fingers crossed it doesn't tonight!
I didn't have to use any Aquaphor today, which is good because it really does block your pores. I used some calendula cream that I got from the homeopath. Today is the first day that I've been able to use it without it stinging.
Most of the feeling in my chin has come back and my forehead isn't feeling nearly as tight either. My face is still pretty light red/pink but it looks like I've just had a reaction to something or perhaps a bit too much sun (no comment). What a difference 6 days makes!Week 7
Sorry, I haven't forgotten to post in the past two weeks. I've just been busy catching up with everything I never had the energy/inclination to do for the past 7 weeks. Okay I lie... it's mostly been trying to get technology to work. Phones/arguing with telecom companies/Internet connections, and computers.
My face is still pinkish in places, but it is fading. I occasionally get a twinge of itch but overall I'm looking much more presentable than I was during the thick of it. I'll try to get a photo out in the next day or so. I'm sleeping MUCH better, but I think that's partially because it gets dark at 4pm.
I've been searching for cannabis oil, but it's not as easy to find as you'd think. I keep getting numerous cannabis oil recommendations from people trying to be helpful. Lurking in the medical marijuana places "looking to score" has been unsuccessful. Talk about feeling out of your element! One place suggested I get my Dr. to sign a form that would allow me access to marijuana for medicinal purposes. There are several hiccups with that. My current GP wouldn't do it, my dermo certainly wouldn't, I'm trying to replace both of them and besides which, I want oil, nothing to smoke.
For other efudex users out there, it does get better and if there's one good thing I can say about the whole experience it's that by the time its over, you're so tired and worn down that the month or so that you used it will seem very foggy and you won't remember much. Of course, that could be just age creeping up on me.